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LISTEN TO DOROTHY BYRNE, OUR TRUSTEE, ON DESERT ISLAND DISCS

Posted: 1 March 2020

Listen to Dorothy Byrne, our Deputy Chair, HERE on Desert Island Discs, talking to Lauren Laverne about her life, GCA and what music she would take to the Island in March 2020. Read her February 2020 article on GCA in The Guardian HERE Dorothy is the Head of News and Current Affairs ...more

NEW GCA GUIDELINES 2020

Posted: 24 January 2020

NEW GCA GUIDELINES 2020 Giant Cell Arteritis affects the blood supply to the scalp, jaw muscles or the back of the eye.  If left untreated, it can lead to blindness or stroke.  The UPDATED GUIDELINES on its treatment ensures clinicians have the latest information about diagnosis ...more

Trustee in Action!

Posted: 13 May 2019

One of our very own trustees Janice Maddock, who herself has Polymyalgia Rheumatica, took part in a 5k obstacle course event in May 2019 to raise funds and awareness for PMRGCAuk. Janice, who was joined by 5 of her friends, loved the challenge, "The Colour Rush event is quite unique, ...more

A drug trial saved my life

Posted: 9 May 2019

Carol Howell, sharing her story in the Mirror, describes how her life was affected by GCA and how much difference Tocilizumab made to her. Read her story  Tocilizumab is now licensed and approved for the treatment of relapsing/refactory GCA for one year.     ...more

How PMR affected American 'sportscaster' Dan Patrick ...

Posted: 8 May 2019

Dan Patrick is well known in the US as the American 'sportscaster' and personality. Dan reveals how being diagnosed with PMR has affected his life for the past seven years.   Hear Dan's story   ...more

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