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Shropshire

Contact: Joan and Sue

Tel: 0300 999 5090

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shropshire@pmrgca.org.uk

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Shropshire

Shropshire Meet Up Group - October 2019

Our October meeting will be on:

Friday 18th October
2pm - 4pm
Ellesmere Town Hall, 
1 - 3 Willow Street, Ellesmere, Shropshire, SY12 0AL

Venue telephone: 01691 622689

We will have a normal Meet-Up for the first 45 minutes, teas/coffees and then Professor Mark Garton will give a presentation at 3pm.  Professor Garton worked at the RJAH Orthopaedic Hosptial, and is now at Wrexham Mealor Hospital.

Professor Mark Garton's presentation will consider the NICE guidelines and other new drugs which might help sufferers going forward, as well as the diagnostic pathways and the British Society of Rheumatology draft guidelines which are still up for comment.  He will also say a little about what the disease is thought to affect older rather than younger people, how it usually presents and how the side-effects of conventional therapies can be mitigaed at least.

Please email shropshire@pmrgca.org.uk for more information and if you need any help to attend the meeting.  If you could let us know whether you can attend, it will help us know what numbers to expect.

Ellesmere is in North Shropshire and fairly easy to get to by car.  There is plenty of parking - free at the town hall, and very reasonable in the car park immediately adjacent.  Ellesmere is a pretty town - why not come earlier and have lunch in town, or at the Boathouse overlooking one of the meres.

Shropshire Meet Up

Notes from our June Meeting (with details of our next meeting in October, below)
at Hamar Centre, Royal Shrewsbury Hospital


Six new faces, five recently diagnosed with either PMR or GCA and a companion, joined the meeting and we all listened to our speaker, Jean Studd, giving an introduction to Qi Gong, a meditative and gentle exercise regime. We then joined in with some simple breathing and gentle exercises. The overall conclusion being....'It was good, I nearly nodded off as it was so relaxing!' 

After a break for refreshments, we then had time for an informal discussion regarding our journeys with PMR/GCA to date. As there were more new faces than returning members it was interesting to note that they all 'found out' about our group via the internet, i.e. PMRGCAuk website, Facebook or a Google search. 

Their stories also reflected that the medical profession is not passing on information regarding support groups and more disturbingly, in respect to GCA sufferers, the struggle to get a diagnosis before sight has been lost. For those without access to a computer, the road of PMR/GCA must be a very lonely road to travel.

Request to GP to give newly diagnosed patients details of PMRGCAuk.
Unfortunately, despite having been given a positive response by the manager of a local GP practice, there are still no leaflets or posters on display, nor has any confirmation been received that the GPs will pass on information to individuals.
 
The Meet-up finished shortly after 4pm.  We agreed that the Hamar Centre at the Royal Shrewsbury Hospital was a good venue to use again at some point in the future.
 
 
Date of Next Meeting
Our next meeting will be on:
Date: Friday18th October
Time: 2pm
Venue: Ellesmere Town Hall (Plenty of parking nearby.)
 
Speaker: We are delighted to announce that Consultant Rheumatologist, Dr Mark Garten will be our speaker.  We hope to have a good turnout for this well-known and well-respected consultant. Dr Garten previously worked at RJAH Orthopaedic Hospital, Gobowen and is currently a consultant at Wrexham Maelor Hospital.

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