Contact: Joan and Sue

Tel: 0300 999 5090

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Midlands What's On

Coventry - September 2019

Fri 27 Sep 2019
Double Tree Hilton Hotel, Paradise Way, Walsgrave Triangle, Coventry, CV2 2ST

Shropshire Group Speaker mtg - October 2019

Fri 18 Oct 2019
Ellesmere Town Hall, 1-3 Willow Street, Ellesmere, Shropshire, SY12 0AL

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Shropshire Meet Up

Notes from our June Meeting (with details of our next meeting in October, below)
at Hamar Centre, Royal Shrewsbury Hospital

Six new faces, five recently diagnosed with either PMR or GCA and a companion, joined the meeting and we all listened to our speaker, Jean Studd, giving an introduction to Qi Gong, a meditative and gentle exercise regime. We then joined in with some simple breathing and gentle exercises. The overall conclusion being....'It was good, I nearly nodded off as it was so relaxing!' 

After a break for refreshments, we then had time for an informal discussion regarding our journeys with PMR/GCA to date. As there were more new faces than returning members it was interesting to note that they all 'found out' about our group via the internet, i.e. PMRGCAuk website, Facebook or a Google search. 

Their stories also reflected that the medical profession is not passing on information regarding support groups and more disturbingly, in respect to GCA sufferers, the struggle to get a diagnosis before sight has been lost. For those without access to a computer, the road of PMR/GCA must be a very lonely road to travel.

Request to GP to give newly diagnosed patients details of PMRGCAuk.
Unfortunately, despite having been given a positive response by the manager of a local GP practice, there are still no leaflets or posters on display, nor has any confirmation been received that the GPs will pass on information to individuals.
The Meet-up finished shortly after 4pm.  We agreed that the Hamar Centre at the Royal Shrewsbury Hospital was a good venue to use again at some point in the future.
Date of Next Meeting
Our next meeting will be on:
Date: Friday18th October
Time: 2pm
Venue: Ellesmere Town Hall (Plenty of parking nearby.)
Speaker: We are delighted to announce that Consultant Rheumatologist, Dr Mark Garten will be our speaker.  We hope to have a good turnout for this well-known and well-respected consultant. Dr Garten previously worked at RJAH Orthopaedic Hospital, Gobowen and is currently a consultant at Wrexham Maelor Hospital.

Shropshire Support Group Meeting - June 2019

Shropshire Support Group meeting: Tuesday, 25th June 2019 at the Royal Shrewsbury Hospital

In addition to the usual get together, there was a talk by Jean Stubbs on alternative therapies, Qi Gong and Shiatsu.

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