Orpington Support Group

Contact: Penny

Tel: 01689 869570

Contact this group

Orpington Support Group meet on the second Tuesday of each month from 10am - 12 noon in the hall at St Paul's Church, Crofton Road. Tea and coffee is available.

Support groups are a really great opportunity to meet, with other and share information.

Location St Paul's Church, Crofton Road, Orpington, Kent BR6 8JE There is disabled access to the main church and hall.

Train - Nearest station is Orpington mainline station (trains from Charing Cross, London Bridge and Victoria or from Ashford, Sevenoaks and Tunbridge Wells).

Buses - If arriving by train at Orpington exit the station via Crofton (Taxi rank) entrance and cross the road to the bus stop facing up hill. Take a 61, 353, 654, R2 or R3 to the bus stop at Oakwood Road/St Paul's Church.

Parking - There is a church car park, if this is full there is ample street parking around the church. Please avoid block any driveway in Oakwood Road or elsewhere.

£4 entry - includes refreshments and contribution to hall hire.

Win up to £25,000 and support local groups in Kent - Hive Lotto gives us 50p for each £1 ticket you buy through our link  And when you win £25,000 Hive Lotto will give £25,000 for the benefit of those with PMR and GCA in Kent!   WOW!
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Tue 1 Sep 2020

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Orpington Support Group

Latest News from Orpington Support Group

Orpington Fundraising Coffee Morning

Orpington Support Goup raised £338 on 12 June at our fundraising morning.

Thank you to everyone who helped and all those who came to support us. It wasn't as hot as last year so we stayed inside and had a very enjoyable morning. The monies raised will be given to the 10th Anniversary Appeal.

Orpington Fundraising Morning

Future Meetings

10 July - We will be watching a recording made at the Newcastle Rheuma Research Roadshow of a talk 'Investigating Giant Cells' by Dr Gary Reynolds. Dr Reynolds carries out his research at the Institute of Cellular Medicine in Newcastle University.
There will be no meeting in August
11 September - Richard Lane OBE, Ambassador and Immediate Past President of Diabetes UK. A opportunity to ask questions about the prevention of diabetes and discuss the risks of getting diabetes as a side-effect of taking steroids
13 November - We are awaiting confirmation and hope to have a consultant rheumatologist to speak to us. Please check back here as information will be posted as soon as the date is confirmed.

Past Meetings
In March the group watched a PMRGCAuk film of Angela Edward's PMR journey

You can watch all the PMRGCAuk videos online at our Vimeo channel

At our April meeting we shared the experiences we have had on our journey to being diagnosed, advice given by our GPs and consultants and coping with day to day living.

At Orpington group we welcome all with PMR and/or GCA and those who support them. We often have family members and friends who come in this role. Margaret, who is featured in the latest (Spring 2018) edition of NewsWire is a member of the group.


Orpington January & February 2018 mtg reports

At the January 2018 meeting, Nitharna Sivarajah of MHRA explained to us how the Yellow Card system worked and how we can all play our part by letting MHRA know via internet, the yellow card app or by telephone of any problems experienced by taking different combinations of medicines.

At the February 2018 meeting, the group watched a video of Professor Dasgupta's talk on developments in GCA and PMR at the PMRGCAuk Members' Day event and followed this up with a discussion over coffee.  Professor Dasgupta is Head of Rheumatology at Southend University Hospital.

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