Orpington Support Group

Contact: Penny

Tel: 0300 999 5090

Contact this group

Orpington Support Group meet on the second Tuesday of each month from 11am - 1pm in the small hall at St Paul's Church, Crofton Road. Tea and coffee is available.

Support groups are a really great opportunity to meet, with other and share information.

Location St Paul's Church, Crofton Road, Orpington, Kent BR6 8JE There is disabled access to the main church and hall.

Train - Nearest station is Orpington mainline station (trains from Charing Cross, London Bridge and Victoria or from Ashford, Sevenoaks and Tunbridge Wells).

Buses - If arriving by train at Orpington exit the station via Crofton (Taxi rank) entrance and cross the road to the bus stop facing up hill. Take a 61, 353, 654, R2 or R3 to the bus stop at Oakwood Road/St Paul's Church.

Parking - There is a church car park, if this is full there is ample street parking around the church. Please avoid block any driveway in Oakwood Road or elsewhere.

£4 entry - includes refreshments and contribution to hall hire.

Win up to £25,000 and support local groups in Kent - Hive Lotto gives us 50p for each £1 ticket you buy through our link  And when you win £25,000 Hive Lotto will give £25,000 for the benefit of those with PMR and GCA in Kent!   WOW!
Greater London What's On

High Wycombe Meet Up - October 2018

Wed 17 Oct 2018
Teenage Room, Wycombe Library, Eden Centre, 5 Eden Place, High Wycombe, Bucks, HP11 2DH

London Meet up - October 2018 (change of venue)

Thu 18 Oct 2018
Toynbee Hall, Education Room on first floor, 28 Commercial Street, London, E1 6LS

Orpington Support Group - November 2018

Tue 13 Nov 2018
St Paul's Church, Crofton Road, Orpington, Kent, BR6 8JE

High Wycombe Meet Up - November 2018

Thu 15 Nov 2018
Teenage Room, Wycombe Library, Eden Centre, 5 Eden Place, High Wycombe, Bucks, HP11 2DH

High Wycombe Meet Up - December 2018

Wed 19 Dec 2018
Teenage Room, Wycombe Library, Eden Centre, 5 Eden Place, High Wycombe, Bucks, HP11 2DH

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Group News

Orpington Support Group

Orpington - September 2018 Meeting News

At our September meeting the group learned about type 2 diabetes, which can be caused by prolonged use of steroids. Richard Lane, OBE, Immediate Past President of DiabetesUK, spoke about the need to make sure that feet are part of the annual NHS check-up with your GP as they can be an early indicator of diabetes. He also pointed out the importance of regular exercise. The group presented a cheque to Richard who will be requesting that it is put towards a research project closely connected with PMR and GCA.

Forthcoming Meetings 2018
Tuesday 9 October - Tom, a member of the group, will be showing us how he manages pain through using trigger points.

Tuesday 13 November - registrar or rheumatology nurse (to be confirmed

There is no meeting in December


Tuesday 8 January - to be decided

Tuesday 12 February - Ruth Jones, Nordic Walking expert will be talking to us about the benefits of walking as a way of exercise.

Latest News from Orpington Support Group

Orpington Fundraising Coffee Morning

Orpington Support Goup raised £338 on 12 June at our fundraising morning.

Thank you to everyone who helped and all those who came to support us. It wasn't as hot as last year so we stayed inside and had a very enjoyable morning. The monies raised will be given to the 10th Anniversary Appeal.

Orpington Fundraising Morning

Future Meetings

10 July - We will be watching a recording made at the Newcastle Rheuma Research Roadshow of a talk 'Investigating Giant Cells' by Dr Gary Reynolds. Dr Reynolds carries out his research at the Institute of Cellular Medicine in Newcastle University.
There will be no meeting in August
11 September - Richard Lane OBE, Ambassador and Immediate Past President of Diabetes UK. A opportunity to ask questions about the prevention of diabetes and discuss the risks of getting diabetes as a side-effect of taking steroids
13 November - We are awaiting confirmation and hope to have a consultant rheumatologist to speak to us. Please check back here as information will be posted as soon as the date is confirmed.

Past Meetings
In March the group watched a PMRGCAuk film of Angela Edward's PMR journey

You can watch all the PMRGCAuk videos online at our Vimeo channel

At our April meeting we shared the experiences we have had on our journey to being diagnosed, advice given by our GPs and consultants and coping with day to day living.

At Orpington group we welcome all with PMR and/or GCA and those who support them. We often have family members and friends who come in this role. Margaret, who is featured in the latest (Spring 2018) edition of NewsWire is a member of the group.


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