Maidstone Support Group

Contact: Margaret

Tel: 0300 999 5090

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Maidstone Support Group meetings are normally on the fourth Monday of each month at The Early Bird pub.  When the Monday is a bank holiday, the meetings will be held on the fourth Tuesday.  See below for upcoming meetings in Maidstone and surrounding area.

The Early Bird, Minor Centre, ME14 5TQ

11am - 1pm

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Maidstone - November 2019 meeting Meeting notes

November 2019 meeting report by Margaret Hicks, Maidstone Group Organiser

"This month's meeting was slightly surreal, developing a decidedly musical theme as the meeting progressed. I think 'Fred,'  as the instigator, should be held partly responsible for this...
Asked to describe my own  PMR journey I told the group how I was only diagnosed with PMR three days before I was due to fly to the USA in 1999. I had been in severe pain and suffered dreadful "locking" of knee and hip joints for six months until the diagnosis and eventual prescription of a large dose of prednisolone. The relief I experienced almost immediately was like a miracle and without that dose I don't think I could have disembarked unaided from the plane at journey's end eight hours later.
Asked where we landed I replied "Phoenix."
 "By the time she got to Phoenix," 'Fred' warbled amidst laughter and thus began a musical thread which continued throughout the meeting. PMR was described as "It's a mystery," "We can work it out," and "I feel fine." When some members mentioned difficulty sleeping "A hard day's night" was aired and "With a little help from my friends" we would soon be "Getting better all the time." 
Well, "The weatherman said it's raining" that morning but by the time we left the meeting I believe we were all "Walking on sunshine."
Laughter they say is the best medicine and looking at all the smiling faces when it was "Time to say Goodbye" at the end of the meeting I have to agree. However amidst all the song titles and jokes we discussed some serious subjects.
Flares, and how to handle the downward dose of steroids afterwards was discussed. Someone asked if it was a good idea to take extra steroids if a strenuous day was anticipated. Opinions were divided on this with some people in favour of the idea whilst others were against it.
Multivitamins: should we take them or should a well balanced diet supply all we need? A spoonful of cod liver oil, recalled by the older members of the group with a shudder, needn't taste so awful if taken in capsule form or as part of my favourite, Malt and cod liver oil. When I was at primary school the dinner lady would hand out a large spoonful of malt per child for one old penny.
Nuts can supply many vitamins, minerals, amino acids etc in one's diet: for instance, over 1% of an adult's body weight is calcium, vital for building bones and teeth. A deficiency can lead to rickets in children and osteoporosis in later adult life. A handful of almonds can supply 88mg of calcium, a similar quantity of apricots and figs can supply 18mg each. Raisins have 17mg and prunes 14mg. Adults need 700mg per day.
Cashew nuts are a good source of zinc which is needed in the creation of new cells in the body, wound healing and the processing of the food we eat.
Selenium plays a key role in the immune system and is necessary to keep the thyroid gland functioning properly. Brazil nuts are an outstanding source of selenium and two medium sized nuts should supply the daily requirement. Sunflower seeds, sesame and linseed are also good sources of selenium. 
Omega 3 fats, vital for the functioning of the brain and the control of heart disease and stroke, may be found in linseed and walnuts, as well as in chia seeds and hemp seeds.
Finally a newspaper cutting written by a GP about drugs such as omeprazole and pantoprazole, taken to suppress the secretion of acid in the stomach, was given to me. Based on a three year study involving over 18,000 patients this GP concludes that there is no need to worry about the effects of the two aforementioned drugs.  The fact remains however that some people cannot tolerate either of these particular drugs, finding ranitidine or indeed just a spoonful or two of yoghurt to be efficacious."
Our next and final meeting of 2019 is on Monday 16th December to be followed by a Festive Meal at the Early Bird.

Maidstone - November 2019 meeting

Our next meeting will be:

Date:    Monday 25th November
Time:   11am
Venue:  Early Bird Pub, Minor Centre, Grovewood Drive,
             Maidstone, Kent, ME14 5JT

For more information contact Margaret at:

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