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Maidstone Support Group

Contact: Margaret

Tel: 0300 999 5090

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Maidstone Support Group meetings are normally on the fourth Monday of each month at The Early Bird pub.  When the Monday is a bank holiday, the meetings will be held on the fourth Tuesday.  See below for upcoming meetings in Maidstone and surrounding area.

The Early Bird, Minor Centre, ME14 5TQ

11am - 1pm

RSVP: It helps us to prepare if we know you are coming - please email: maidstone@pmrgca.org.uk

South East England What's On

Brighton Meet Up Group

Mon 28 Oct 2019
The Ladies Mile, Patcham, Mackie Avenue, Brighton, BN1 8RA

Maidstone - October 2019

Mon 28 Oct 2019
Early Bird Pub, Minor Centre, Grovewood Drive, Maidstone, Kent, ME14 5JT

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Maidstone Support Group

Maidstone Group Meeting - September 2019

August's meeting notes (& September meeting details):
 
We welcomed a new lady to the Support Group this month, so a whole variety of subjects came out for an airing, some old chestnuts but also some new subjects arose.
 
Whether or not steroids are to blame, those who take them do not seem able to get a good night's sleep.... the hot weather doesn't help of course. However, once again the benefits of power napping were extolled by those who can and do! Even half an hour seems to work wonders.
 
A question recently asked by a group member was raised by another who had not been at the previous meeting when this was discussed..... the question was "How do I recognise a "flare" as opposed to muscle tiredness after too much gardening etc."
 
It seems that most people up the steroid dose for a few days: if the pain goes away, then it's a "flare, " if not then the gardening is to blame and we rapidly lower the steroid dose to what it was before.
 
Again, questions were asked about the benefits of coated versus uncoated steroids and whether certain "stomach protectors" are better than others. It would seem that it's a case of horses for courses, some people seem to find that by taking coated tablets (which don't work until in the gut, as opposed to the stomach with uncoated tablets) they don't really need anything extra, although the efficacy of yoghurt was mentioned by several people.
 
The importance of "bone builders" was stressed and the need for regular DEXA scans (on the same machine each time) was emphasised.
It would appear that the difficulty of diagnosing PMR from blood tests is still a major problem for GPs. I found from personal experience that my blood tests were often inconclusive.
 
The Group's next meeting will take place on:
Monday 23rd September
at 11am
 at the Early Bird Pub, Minor Cenre, Grovewood Drive,
Maidstone, Kent, ME14 5JT
contact: maidstone@pmrgca.org.uk

Maidstone Group Meeting - August 2019

The Maidstone group on Monday 22 July welcomed a new lady who suffers from PMR. It seems that her doctor was at first uncertain about diagnosing PMR but has since come to the conclusion that that is what she is suffering from.

The Group gave her various tips and advice about Dexa scans, vitamin D, stomach protectors, blood tests etc. etc. They also advised her to go to the Health Unlocked forum which is helpful to a lot of people.

 

The next Maidstone Group meeting will be on TUESDAY 27 August since the Monday falls on a Bank Holiday.


Date: Tuesday 27th August at 11am
Venue: Early Bird Pub, Minor Cenre, Grovewood Drive,
Maidstone, Kent, ME14 5JT
Contact: maidstone@pmrgca.org.uk

 

 

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