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Maidstone Support Group

Contact: Margaret

Tel: 0300 999 5090

Contact this group

Maidstone Support Group is on the fourth Monday of each month at The Early Bird pub

Minor Centre,
Grovewood Drive,
Maidstone, Kent
ME14 5JT

11am - 1pm
Support groups are a really great opportunity to meet and share with others.

It helps us to prepare if we know you are coming - email: pmrgca.maidstone@gmail.com

South East England What's On

Worthing Support Group

Tue 13 Nov 2018
Durrington Community Centre, 2 Romany Rd, Worthing BN13 3ED

Maidstone Meet Up - November 2018

Mon 26 Nov 2018
Early Bird Pub, Minor Centre, Grovewood Drive, Maidstone, Kent, ME14 5JT

Surrey Support Group

Tue 4 Dec 2018
The Function Room, The River Bourne Club, Heriot Road, Chertsey, Surrey, KT16 9DR

Worthing Support Group - Speaker Meeting - December 2018

Tue 11 Dec 2018
Durrington Community Centre, 2 Romany Rd, Worthing BN13 3ED

Brighton - December 2018

Mon 17 Dec 2018
The Ladies Mile Pub, Mackie Avenue, Patcham, Brighton, BN1 8RA

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Maidstone Support Group

Maidstone - October 2018 mtg report

Monday, 22nd October 2018 mtg

We welcomed two new ladies to the group on Monday.

Unfortunately the talk by the osteopath was cancelled at the last minute through illness, so we discussed various things, one of which was the importance of having a flu jab when on steroids. Most members of the group have had their jab already this year, the rest have booked an appointment. We also discussed the advisability of speaking to your GP about having a shingles jab once the requisite age group is reached.

The talk veered to postural stability, it would appear that once women reach the menopause their postural stability goes down the tubes, so to speak.  It was mentioned that adult ballet classes will improve balance.  A couple of members of the Support Group have started going to Tai Chi classes which helps posture and they have volunteered to try to get a speaker for us. Perhaps every meeting could be started and finished with a few simple exercises but we all agreed strictly NO Lycra!

A member of the group then demonstrated a couple of simple exercises to help balance: hold onto a chair and go up on your tip toes and then back down, do this as many times as you like; or raise the right knee high to touch your outstretched right hand, repeat a few times, then do the same with your left knee and hand. 

A few fund raising ideas were bandied about including a sponsored walk round Mote Park. (When the weather is better).

This idea was capped by the suggestion that we stop en route for "afternoon tea." This was greeted with enthusiasm by all, although Margaret's idea of taking the swan boats out on the lake as a finale fell upon deaf ears and disappeared into the lake of talk without a ripple!

We decided that it would be good to have a festive meal at the Early Bird after the December meeting on 17th December so everyone will go online to view menu choices ready to give their choice at the 26th November meeting.

Identifying GCA:  At a recent meeting, one of our members who has PMR said they were having temple pain. We told her to go IMMEDIATELY to her GP or find a Rheumatologist as we were concerned that she had GCA as well as PMR.  The member managed to get to a Rheumatologist quickly and she tells us her steroids were increased immediately from 12 mg to 60 mg.  We all felt that was a great result, which possibly saved her eyesight.

The November meeting should be really interesting, a member has his Reflexologist agree to come and give us a talk and demonstration. Watch this space.

Maidstone - September 2018 mtg Reports

We had two meetings this month

Monday, 24th September mtg:

There were sixteen of us at Monday's meeting, encouraging from my point of view but it shows that there are a great many people out there who need support.

In order to accommodate some members who are unable to attend a Monday meeting, the group agreed that a meeting which would fall on a Bank Holiday Monday should be moved to the following day which is of course a Tuesday. (Wednesdays seemed very unpopular for some reason).

The subject of speakers was broached. I had previously thought it would be a good idea to ask someone from the local Diabetes group to give us a talk, and intend pursuing this in the near future. It was suggested that an optician would also be interesting especially since at least two people present who suffer from GCA had actually been diagnosed by their opticians and sent to hospital post haste.

The suggestion that a reflexologist could talk to us was greeted enthusiastically and one of the group has agreed to facilitate this, with a view to having this speaker in November.

Talk turned to Dexa scans again and weight bearing exercise such as Nordic Walking which has been taken up by Penny who brought her poles with her to show us. Various people tried out the poles and I predict that we will be seeing people going shopping with their poles in the near future.

Swimming was also extolled as good exercise as was hydrotherapy. Perhaps we should hold a meeting in the swimming pool at the Hilton?!

Various PMR problems and queries rounded up the meeting, with the GCA people retiring to another room to talk over various problems relating to their specific malady.

The next meeting will be on Monday 22 October and will be the talk by an Osteopath which was postponed last month

Monday, 3rd September mtg:

Our meeting this week was swollen by five "newbies," four ladies and one gentleman.  Four are PMR sufferers and one has GCA.  The group decided that it would benefit everyone if they went round the group telling of problems encountered during the past couple of months and listening to the stories from our latest attendees. Some had been diagnosed a while ago but one had only learnt of his condition eight weeks ago, so he was still a little shell shocked. 

The group generally discussed the merits of uncoated and coated steroid tablets, some people revealing that their GPs refused to prescribe  the uncoated variety .... owing to the extra cost? 

The talk then naturally turned to Dexa scans, the newbies being urged to have one as soon as possible,  and the vexed question of such medication as Alendronic acid etc etc.... 

Thanks to all who attended our meetings.

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