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Maidstone Support Group

Contact: Margaret

Tel: 0300 999 5090

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Maidstone Support Group meetings are normally on the fourth Monday of each month at The Early Bird pub.  When the Monday is a bank holiday, the meetings will be held on the fourth Tuesday.  See below for upcoming meetings in Maidstone and surrounding area.

The Early Bird, Minor Centre, ME14 5TQ

11am - 1pm

RSVP: It helps us to prepare if we know you are coming - please email: maidstone@pmrgca.org.uk

South East England What's On

Worthing Support Group - May 2020

Tue 12 May 2020
Durrington Community Centre, 2 Romany Road, Worthing, BN13 3ED

Eastbourne May 2020 meeting

Tue 12 May 2020
Tesco Extra, Lottbridge Drove, Eastbourne, BN23 6QD

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Maidstone Support Group

Maidstone Meetings - POSTPONED

Following advice from PMRGCAuk Maidstone meetings have been postponed.  We hope to resume future meetings, but this will depend on the Coronavirus guidance at the time.

The charity states that people taking immunosuppressive drugs, including prednisolone and other cortico-steroids and methotrexate are NOT at increased risk of catching the Coronavirus (Covid-19) virus.  It does seem that the infection may have a greater risk of complications in people taking these drugs but the very strong advice is that nobody should change their treatment regime except under medical instructions.

Keep washing your hands, and NHS 111 should be your first port of call.

Look at healthunlocked.com/pmrgca and www.facebook.com/pmrgcauk

 

 

KENT: Maidstone Meeting Report - February 2020

We welcomed a new lady to the group this month, another casualty of PMR.
 
Several interesting subjects emerged during this month's meeting, amongst them was Dupuytren's contracture also known as "Viking Disease."  This is a painless deformity of the hand in which one or more fingers (usually the two fingers furthest from the thumb) are bent towards the palm and can't be straightened. This is a common ailment that affects about 10% of men and 2% of women in the  Nordic countries. The disease is most common amongst individuals older than 60. It is called Viking Disease because as the Viking "colonizers" intermarried they spread a malady frequently affecting their hands and subsequently those of their offspring.
 
Interestingly, the highest prevalence of people with PMR is found in Caucasians, in Northern European countries, especially in Scandinavia. Viking ancestry is associated with increased risk of PMR.
 
Two people at yesterday's meeting have both PMR and Dupuytren's contracture.
 
It would appear that steroid use doesn't always mean weight gain. One member of the group reported a weight LOSS of two stone when first put on a course of prednisolone. She also developed low blood pressure. Moodiness and hot flushes were also reported, affecting both men and women.
 
Having come back into the PMR fold, after a year's remission, I have noticed that my skin seems thinner and I bruise much more easily, get much more tired and have difficulty getting to sleep,  have got a fuzzy "moon face," and feel hungrier. 
 
One group member mentioned that alcohol renders steroids much less effective. Moderation in all things seems to be the watchword.
 
The value of "group support" was mentioned, both as a comfort and as a way of bringing a new perspective to bear on an individual's problems. This, it would seem, also applies to problems with self-cleaning ovens!
 
Next Meeting: Monday 23 March 2020

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