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East Anglia PMR-GCA Support

Contact: Sandra Waspe

Tel: 0300 999 5090

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Membership of the organisation is not required to attend our meetings.

If you would like any further information please contact pmrgcaeachair@btinternet.com

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East Anglia PMR-GCA Support

Could you help with this important research?

PMR-GCA Support East Anglia is pleased to announce that they are funding a small research study by researchers from the University of East Anglia, Dr Janice Mooney and Dr Richard Watts, titled “An Exploration of the informal care and informational needs of carers of people with Polymyalgia rheumatica / Giant cell arteritis” (CAPRICA).

People with PMR/GCA have a close relationship with their carers but their carers’ specific needs are often not investigated. The research team have previously shown that people with vasculitis have high informational needs, particularly diagnosis, prognosis, investigations, treatment and side effects. What is not known is whether their carers also have high informational needs and whether they are the same. This project aims to investigate the informational needs of carers and to determine their unmet needs by conducting a series of face-to-face interviews with ten pairs of individuals and carers. They will also assess the role that carers play in the lives of people with PMR/GCA.

The researchers have also previously shown that people with vasculitis and their carers rarely recognise the term 'carer' as applying to them, but are using the term to describe anyone who gives care - either occasionally or someone who undertakes full personal care - often a partner or family member. They also know that people with these conditions need different levels of help at different times.

If you are interested in taking part in this study or would like further information please contact Karly Graham, Research Assistant

Karly Graham – Research Assistant
Room 2.22 Norwich Medical School
University of East Anglia
Norwich NR4 7TJ
0777 39 38 307 (please leave a message) or
e-mail karly.graham@uea.ac.uk
 

East Anglia AGM Meeting - April 2018

We will hold our AGM on Thursday 26th April 2018 (10:30 am for 11:00 am)  at the Needham Market Community Centre, School Street, Needham Market, Ipswich, IP6 8BB.

Following the AGM at about 11.15 there will be a talk given by Sue Voules who is a Specialist Physiotherapist and Rheumatology Practitioner.

There are multiple roadworks in the area at present, so it might be advisable to allow extra travelling time in case diversions are in progress.

 

 

 

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