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PMR-GCA Support East Anglia

Contact: Dr David Rose

Tel: 0300 999 5090

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East England What's On

Harlow - January 2019

Mon 14 Jan 2019
Redeemer Lutheran Church Hall, 22 Tawneys Rd, Harlow, CM18 6QS

Cambridge Meet Up - January 2018

Tue 22 Jan 2019
LivingStones Café, The Stone Yard Centre, 41b St Andrew's Street, Cambridge, CB2 3AR

Harlow - February 2019

Mon 11 Feb 2019
Redeemer Lutheran Church Hall, 22 Tawneys Rd, Harlow, CM18 6QS

Harlow - March 2019

Mon 11 Mar 2019
Redeemer Lutheran Church Hall, 22 Tawneys Rd, Harlow, CM18 6QS

Harlow - May 2019

Mon 13 May 2019
Redeemer Lutheran Church Hall, 22 Tawneys Rd, Harlow, CM18 6QS

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PMR-GCA Support East Anglia

East Anglia - October 2018 Meeting

The next meeting of the Polymyalgia Rheumatica/Giant Cell Arteritis East Anglia Support Group will be at 11am on Thursday 11th October at the Community Centre, School Street, Needham Market, Suffolk, IP6 8BB. The hall will be open from 10.30am for refreshments and meeting others who experience the same problems as you. The speaker will be Dr Max Yates, Clinical Lecturer at the University of East Anglian Medical School who will talk about the history of PMR and GCA, developments in treatment and future research. We look forward to hearing from him and would encourage as many of you who suffer from these conditions to join us.

Membership of the organisation is not required to attend. If you would like any further information please contact pmrgcaeachair@btinternet.com

Could you help with this important research?

PMR-GCA Support East Anglia is pleased to announce that they are funding a small research study by researchers from the University of East Anglia, Dr Janice Mooney and Dr Richard Watts, titled “An Exploration of the informal care and informational needs of carers of people with Polymyalgia rheumatica / Giant cell arteritis” (CAPRICA).

People with PMR/GCA have a close relationship with their carers but their carers’ specific needs are often not investigated. The research team have previously shown that people with vasculitis have high informational needs, particularly diagnosis, prognosis, investigations, treatment and side effects. What is not known is whether their carers also have high informational needs and whether they are the same. This project aims to investigate the informational needs of carers and to determine their unmet needs by conducting a series of face-to-face interviews with ten pairs of individuals and carers. They will also assess the role that carers play in the lives of people with PMR/GCA.

The researchers have also previously shown that people with vasculitis and their carers rarely recognise the term 'carer' as applying to them, but are using the term to describe anyone who gives care - either occasionally or someone who undertakes full personal care - often a partner or family member. They also know that people with these conditions need different levels of help at different times.

If you are interested in taking part in this study or would like further information please contact Karly Graham, Research Assistant

Karly Graham – Research Assistant
Room 2.22 Norwich Medical School
University of East Anglia
Norwich NR4 7TJ
0777 39 38 307 (please leave a message) or
e-mail karly.graham@uea.ac.uk
 

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