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Read stories from those who have experienced PMR or GCA. 

Roger's story

"It's just reassuring to talk to others" 

Roger church, 70, former fireman, builder and keen golfer woke one morning in severe pain, " I felt as if I had been stabbed in the leg and someone was twisting the knife. I could hardly get out of bed. I presumed it was just sore muscles from working. I took some pain killers and it wore off gradually, so I went off to play 18 holes!"  With the pain returning, Roger went to his GP a few days later, "My GP initially suggested it might be groin strain and said I should leave it a week and return again. When I came back I saw a different doctor who sent me for a blood test and I was put on steroids. They helped, but not enough."

Roger's daughter, searching online, found PMRGCAuk, " I called the Telephone Helpline and felt so much better afterwards. I can't tell you how much difference it makes to speak to someone who has had the condition, who knows what it's like and can share their own experiences. I was directed to a paper on the website by a top Rheumatologist. It gave me the tools to go back to my doctor and discuss things like dosage."

Feeling better now, Roger is helping to spread the word, "When I come across people now, I say to them, 'these are the people, give them a call. They are more helpful than the doctor, as they will know what you are going through!"  

 

Rosalind's story

"I shall always be indebted to her."

Rosalind arrived back from holiday, initially thinking she might have flu, "My symptoms gradually got worse, until my son insisted on taking me to A&E. The doctors didn't know what was wrong initially and kept me in. Eventually I was diagnosed with Giant Cell Arteritis. I had never heard of it! I was given steroids and started to feel better at first. We looked online for more information and I realised how close I  had come to permanently losing vision and I was scared. Now I'm the one explaining to people what GCA is! 

When Rosalind's GCA returned two years later, she knew how important it was to act, "While I was in remission, I had contacted the PMRGCAuk Telephone Helpline and spoke to one of the volunteers. I shall always be indebted to her. Her knowledge was invaluable to me. I knew I had symptoms and was able to insist I got the help I needed. It's good to know that if I ever need help and guidance, the Helpline is there!" 

 

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