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Trustees

Chair

Penny Denby - chair@pmrgca.org.uk

Penny trained in design and communication at Ravensbourne College of Art & Design and Greenwich University. She taught Design & Technology at Darrick Wood School in Orpington and Coopers School in Chislehurst for 13 years. In 2000 she set up a partnership designing websites and corporate identities while at the same time becoming co-founder of the 1230.co.uk business network. Currently with a business partner she is developing a network of local information sites, for over-50s - services4seniors.co.uk

 


Deputy Chair

Dorothy Byrne  -  Publicity & Campaign

Dorothy is the Head of News and Current Affairs at Channel Four Television. She was previously a producer on World In Action, the editor of The Big Story on ITV and the editor of Dispatches. Her programmes have won numerous International Emmy, BAFTA and Royal Television Society awards. She was created a Fellow of The Royal Television Society for her “outstanding contribution to television”, received a Scottish BAFTA in 2015 for Outstanding Contribution to Television and has been awarded the Women in Film and Television Award for Factual Television. She is the chair of the international organisation the Ethical Journalism Network.

 

Hon Treasurer

Robin Hamilton  -  Support Groups

Robin was educated at Radley College and then at Imperial College London, where he achieved a Mechanical Engineering Honours Degree and later a post graduate Diploma in Management Studies. Robin started his own business manufacturing office furniture, eventually employing 200 people. The business was sold in 2004. Robin still continues to mentor SME businesses locally. He has been Treasurer of two local churches and of PMRGCAuk. Robin is married to Elizabeth and they have 3 children and 6 grandchildren. He lives in a farmhouse in Birdham south of Chichester.

 

 

 

Lady Wendy Levene  -  Fundraising

Lady Wendy was Lady Mayoress of the City of London in 1998/1999 and is a Liveryman of the Worshipful Company of Gardeners and the Worshipful Company of Shipwrights. In 1989 she launched a type 23 frigate HMS ARGYLL and as their sponsor stays in constant touch and has enjoyed on occasions going to sea with her. Lady Wendy is a Trustee of the Jewish Museum London where she helped to raise 10 million pounds for the extension and renovation of the Museum, and a Member of the Trust Working Committee of the Royal National Theatre in connection with their multi million pound redevelopment project.

 

 

Dr Sarah Mackie  -  Research

Sarah is an academic consultant rheumatologist at the University of Leeds. She is passionate about improving outcomes for patients with PMR and GCA.

Visit Sarah's profile at the Leeds Institute of Rheumatic and Musculoskeletal Medicine website




 

 

Janice Maddock - Awareness Programme

Janice is recently retired following a long and varied career in childcare.  She developed Polymyalgia Rheumatica (PMR) and was diagnosed at 55 in February 2013. This was after a 6 month struggle of not knowing what was wrong with her. Luckily her GP was excellent and picked it up straight away. She had never heard of it, but since her diagnosis realised that her mum, who sadly passed away, had it but had never been diagnosed despite various care and interventions.

Because of this and the constant explaining to friends and family what PMR actually was, Janice decided she wanted to raise awareness of PMR and GCA with anyone that would listen! Through her experience of training and speaking to groups, she has devised a programme to raise awareness of PMR and GCA to people over 50 and professionals who work with them.

 

Wendy Morrison  - Support Groups

Wendy has recently retired from a varied career in banking, insurance and customer service.  Wendy has also worked with charities, mostly in a voluntary capacity such as Homestart, St Margarets Hospice and Scouting.  As treasurer of the local Scout group she was instrumental in obtaining funding,  purchasing a building and overseeing its complete renovation, which is now a great asset to the local community.  After contracting PMR, together with others, she helped  set up PMRGCAuk and has been a trustee since inception as well as running support groups in the South West.

 

Chris Young  -  Helpline

Chris is a recently retired Paediatric Physiotherapist who trained in Coventry and worked in various children’s hospitals including the Hospital for Sick Children, Great Ormond Street, Westminster Children’s Hospital and latterly the Royal Alexandra Children’s Hospital in Brighton. Chris was prompted to become a Trustee after having PMR and GCA and benefiting from help she received from the charity. Chris is responsible for organising and participating in the charity Helpline and co-runs the West Sussex and Brighton Support Group. She has a wide range of interests from all things medical through sports, history and gardening to music and dancing!

 

Staff

Director

Kathryn Busby  -  kathryn@pmrgca.org.uk

Kathryn joined PMRGCAuk in 2015. She has a master's degree in human rights law and has worked in the voluntary sector since 2001, including three years as co-director of The Equality Trust, where she built the organisation from scratch alongside the founders, and two years as operations manager for The Access Project, helping steer the charity through an exciting period of growth. Kathryn loves working with small charities and campaigns to help them achieve a big impact. In addition to her 2.5 days per week for PMRGCAuk, Kathryn does freelance consultancy work. She is a non-executive director of Campaign Against Arms Trade, treasurer of the Worcester branch of the Womens' Equality Party and a trustee of St Margaret's House.



Outreach Coordinator

Claire Jones - groups@pmrgca.org.uk

Claire joined PMRGCAuk in September 2016. Her role involves supporting and developing PMRGCAuk’s growing network of support groups and meet-ups. She previously worked for the NHS, national charities and patient and user led organisations where she managed projects supporting clients in the patient and public engagement field. She has a degree in Sociology, a master's in Health Promotion and a postgraduate diploma in Management. Claire is a firm believer in the value of peer support and is passionate about empowering people to participate in helping improve health services. Claire lives in Brighton with her husband and two children.

 

 

Membership Secretary

 

Laurene Brooks - admin@pmrgca.org.uk


 

Rheuma Research Roadshows

Project lead

Kate Gilbert - kate.gilbert@pmrgca.org.uk

Kate Gilbert developed PMR in 2005 and knew immediately what was wrong with her because her mother had also had PMR. However, Kate was shocked at how little information and support there was around at that time, and didn't know anything at all about GCA.  She helped to get the group together that eventually formed PMRGCAuk, and served as Chair of the charity's Board of Trustees for four years until 2015. Kate is author of Polymyalgia Rheumatica and Giant Cell Arteritis: a survival guide (to find out more visit www.polywotsit.com) and is passionate about preventing blindness caused by late diagnosis of GCA.

PMRGCAuk's Rheuma Research Roadshows are supported by Wellcome Trust.

 

 

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